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X-WR-CALNAME:PFIC
X-ORIGINAL-URL:https://www.pfic.org
X-WR-CALDESC:Events for PFIC
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TZID:UTC
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TZOFFSETFROM:+0000
TZOFFSETTO:+0000
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DTSTART:20180101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20200928T150000
DTEND;TZID=UTC:20200928T160000
DTSTAMP:20260403T214309
CREATED:20200913T222127Z
LAST-MODIFIED:20200919T202753Z
UID:88764-1601305200-1601308800@www.pfic.org
SUMMARY:WEBINAR Surgical Management of PFIC: Diversions and Transplant
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-surgical-management-of-pfic-diversions-and-transplant/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200928T140000
DTEND;TZID=UTC:20200928T150000
DTSTAMP:20260403T214309
CREATED:20200913T222435Z
LAST-MODIFIED:20200919T202826Z
UID:88761-1601301600-1601305200@www.pfic.org
SUMMARY:WEBINAR Medical Management of PFIC: Nutrition and Medications
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-medical-management-of-pfic-nutrition-and-medications/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191005
DTEND;VALUE=DATE:20191006
DTSTAMP:20260403T214309
CREATED:20200217T155028Z
LAST-MODIFIED:20200303T171704Z
UID:86713-1570233600-1570319999@www.pfic.org
SUMMARY:PFIC Awareness Day 2019
DESCRIPTION:Inspired by our children and brought to life by our board members\, this day is dedicated to igniting a fire in our community and bringing awareness to the debilitating itch that PFIC has on our children\, our families and our lives. \nOn October 5\, 2019 the PFIC Advocacy and Resource Network inspired the first annual PFIC Awareness Day. On this day\, members of our community hosted individual fundraisers and awareness efforts in their own personal communities. In collaboration with Life Gave Lemons\, the PFIC Network provided toolkits to the first 25 members of our community who expressed interest in hosting a fundraiser. Toolkits included stickers\, bracelets\, pens and information on how to create your own personal awareness day. Those who did not host fundraisers still were involved in spreading awareness on social media by introducing themselves and their PFIC story with the #pficawareness and #stoptheitch. We look forward to building on this day next year as we plan for the second PFIC Awareness Day!
URL:https://www.pfic.org/event/pfic-awareness-day-2019/
CATEGORIES:Past Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190621T080000
DTEND;TZID=UTC:20190625T170000
DTSTAMP:20260403T214309
CREATED:20200217T154830Z
LAST-MODIFIED:20200228T135405Z
UID:86710-1561104000-1561482000@www.pfic.org
SUMMARY:2019 Family Conference
DESCRIPTION:The PFIC Family Conference was the first ever opportunity for PFIC families worldwide to get together at one event. Thank you to all who traveled to attend\, the weekend was extremely special! \nThis conference was made possible by the extreme generosity of the Allagille’s Syndrome Alliance who allowed us to join in their weekend. Also\, a very special thank you to our Presenting Sponsor\, Albireo Pharma and our supporting sponsor\, Mirum Pharmaceuticals. Their support enabled 22 families struggling with PFIC to join together in one place.
URL:https://www.pfic.org/event/2019-family-conference/
LOCATION:Cincinnati\, Ohio\, Cincinnati\, Ohio\, USA
CATEGORIES:Past Events
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFICFamilyConferenceProgramfinal-1.jpg
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