BEGIN:VCALENDAR
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PRODID:-//PFIC - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:PFIC
X-ORIGINAL-URL:https://www.pfic.org
X-WR-CALDESC:Events for PFIC
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X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20180101T000000
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20200308T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20201101T060000
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TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
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TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
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TZOFFSETFROM:-0400
TZOFFSETTO:-0500
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DTSTART:20221106T060000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20210410T000000
DTEND;TZID=UTC:20210410T000000
DTSTAMP:20260403T210402
CREATED:20210128T044538Z
LAST-MODIFIED:20210128T044538Z
UID:90390-1618012800-1618012800@www.pfic.org
SUMMARY:Global Advisory Board
DESCRIPTION:Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together\, we hope that we can create solutions to fit all resource gaps.
URL:https://www.pfic.org/event/global-advisory-board-2/2021-04-10/
CATEGORIES:Global Advisory Board
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210408T150000
DTEND;TZID=UTC:20210408T160000
DTSTAMP:20260403T210402
CREATED:20210127T235240Z
LAST-MODIFIED:20210319T194104Z
UID:90379-1617894000-1617897600@www.pfic.org
SUMMARY:Patient & Parent Advisory Board
DESCRIPTION:Monthly meetings for our patient and caregiver community to share feedback\, resources and present new ideas to improve the quality of life of the PFIC Community.
URL:https://www.pfic.org/event/patient-parent-advisory-board-2021-04-01/
CATEGORIES:Patient/Parent Advisory Board
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210322T150000
DTEND;TZID=UTC:20210322T160000
DTSTAMP:20260403T210402
CREATED:20201226T141937Z
LAST-MODIFIED:20230615T160529Z
UID:89862-1616425200-1616428800@www.pfic.org
SUMMARY:FDA Listening Session
DESCRIPTION:An FDA Listening Session is an opportunity for those who experience a disease (such as PFIC) as a patient of caregiver to speak to the FDA. This allows the FDA the opportunity to understand the desperate need for further treatments to be developed. Listening sessions are used as a resource for these regulators to engage with patients or their advocates so that the patient community can share their experience with their disease by talking directly to FDA staff.
URL:https://www.pfic.org/event/fda-listening-session/
CATEGORIES:Advocacy Events
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210208T200000
DTEND;TZID=UTC:20210208T213000
DTSTAMP:20260403T210402
CREATED:20210127T234825Z
LAST-MODIFIED:20210308T143325Z
UID:90364-1612814400-1612819800@www.pfic.org
SUMMARY:Board Of Directors Meeting
DESCRIPTION:Monthly meetings of governance and direction for our organization. These meetings are for members of the Board of Directors\, all other attendees are by invite only.
URL:https://www.pfic.org/event/board-of-directors-meeting-2/2021-02-08/
CATEGORIES:Board of Directors
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210206T000000
DTEND;TZID=UTC:20210206T000000
DTSTAMP:20260403T210402
CREATED:20210128T044405Z
LAST-MODIFIED:20210128T044405Z
UID:90388-1612569600-1612569600@www.pfic.org
SUMMARY:Global Advisory Board
DESCRIPTION:Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together\, we hope that we can create solutions to fit all resource gaps.
URL:https://www.pfic.org/event/global-advisory-board/
CATEGORIES:Global Advisory Board
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210105T170000
DTEND;TZID=America/New_York:20210105T180000
DTSTAMP:20260403T210402
CREATED:20201231T025148Z
LAST-MODIFIED:20201231T025148Z
UID:89995-1609866000-1609869600@www.pfic.org
SUMMARY:PFIC Community Call
DESCRIPTION:PFIC Community Calls through January will be hosted by the PFIC Network as a place for members of the community to connect and ask questions. These calls are open to PFIC community members. \nTopic: PFIC Community Call\nTime: Jan 29\, 2021 05:00 PM Eastern Time (US and Canada) \nJoin Zoom Meeting\nhttps://zoom.us/j/7275588969 \nMeeting ID: 727 558 8969\nOne tap mobile\n+13017158592\,\,7275588969# US (Washington D.C)\n+13126266799\,\,7275588969# US (Chicago) \nDial by your location\n+1 301 715 8592 US (Washington D.C)\n+1 312 626 6799 US (Chicago)\n+1 646 558 8656 US (New York)\n+1 253 215 8782 US (Tacoma)\n+1 346 248 7799 US (Houston)\n+1 669 900 9128 US (San Jose)\n+1 647 374 4685 Canada\n+1 647 558 0588 Canada\n+1 778 907 2071 Canada\n+1 204 272 7920 Canada\n+1 438 809 7799 Canada\n+1 587 328 1099 Canada\n+61 3 7018 2005 Australia\n+61 7 3185 3730 Australia\n+61 8 6119 3900 Australia\n+61 8 7150 1149 Australia\n+61 2 8015 6011 Australia\n+44 203 481 5240 United Kingdom\n+44 203 901 7895 United Kingdom\n+44 208 080 6591 United Kingdom\n+44 208 080 6592 United Kingdom\n+44 330 088 5830 United Kingdom\n+44 131 460 1196 United Kingdom\n+44 203 481 5237 United Kingdom\n+39 020 066 7245 Italy\n+39 021 241 28 823 Italy\n+39 069 480 6488 Italy\n+48 22 306 5342 Poland\n+48 22 307 3488 Poland\n+48 22 398 7356 Poland\n+49 69 7104 9922 Germany\n+49 30 5679 5800 Germany\n+49 69 3807 9883 Germany\n+49 695 050 2596 Germany\n+356 2778 1288 Malta\n+356 2776 1777 Malta\n+64 3 659 0603 New Zealand\n+64 4 886 0026 New Zealand\n+64 9 884 6780 New Zealand\n+90 216 900 2606 Turkey\n+90 216 900 1866 Turkey\nMeeting ID: 727 558 8969\nFind your local number: https://zoom.us/u/adNAYci0NT \n 
URL:https://www.pfic.org/event/pfic-community-call/2021-01-05/
CATEGORIES:Community Calls
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201208T193000
DTEND;TZID=UTC:20201208T210000
DTSTAMP:20260403T210402
CREATED:20201106T152552Z
LAST-MODIFIED:20201106T195138Z
UID:89333-1607455800-1607461200@www.pfic.org
SUMMARY:PFIC 101
DESCRIPTION:
URL:https://www.pfic.org/event/pfic-101/
CATEGORIES:Educational Webinar Series
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201119T193000
DTEND;TZID=UTC:20201119T203000
DTSTAMP:20260403T210402
CREATED:20200919T201312Z
LAST-MODIFIED:20200919T201312Z
UID:88841-1605814200-1605817800@www.pfic.org
SUMMARY:Patient/Parent Advisory Board Meeting
DESCRIPTION:
URL:https://www.pfic.org/event/patient-parent-advisory-board-meeting/2020-11-19/
CATEGORIES:Patient/Parent Advisory Board
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201110T190000
DTEND;TZID=UTC:20201110T200000
DTSTAMP:20260403T210402
CREATED:20200926T111631Z
LAST-MODIFIED:20200926T111631Z
UID:88873-1605034800-1605038400@www.pfic.org
SUMMARY:WEBINAR: Mental Health-Coping Strategies for the Patient and Caregiver
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-mental-health-coping-strategies-for-the-patient-and-caregiver/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201107T160000
DTEND;TZID=UTC:20201107T170000
DTSTAMP:20260403T210402
CREATED:20200913T222358Z
LAST-MODIFIED:20200919T202530Z
UID:88770-1604764800-1604768400@www.pfic.org
SUMMARY:WEBINAR Genetics of PFIC
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-genetics-of-pfic/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201019T193000
DTEND;TZID=UTC:20201019T203000
DTSTAMP:20260403T210402
CREATED:20200919T200529Z
LAST-MODIFIED:20200926T111420Z
UID:88835-1603135800-1603139400@www.pfic.org
SUMMARY:Understanding the Drug Development Process
DESCRIPTION:
URL:https://www.pfic.org/event/understanding-the-drug-development-process/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201017T110000
DTEND;TZID=UTC:20201017T120000
DTSTAMP:20260403T210402
CREATED:20200913T223207Z
LAST-MODIFIED:20200919T203028Z
UID:88776-1602932400-1602936000@www.pfic.org
SUMMARY:Registries
DESCRIPTION:
URL:https://www.pfic.org/event/how-to-tell-your-story/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201010T180000
DTEND;TZID=UTC:20201010T193000
DTSTAMP:20260403T210402
CREATED:20200913T223411Z
LAST-MODIFIED:20200919T203057Z
UID:88780-1602352800-1602358200@www.pfic.org
SUMMARY:How To Tell Your Story
DESCRIPTION:
URL:https://www.pfic.org/event/how-to-tell-your-story-2/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201002T200000
DTEND;TZID=UTC:20201002T203000
DTSTAMP:20260403T210402
CREATED:20200919T200127Z
LAST-MODIFIED:20200919T203554Z
UID:88831-1601668800-1601670600@www.pfic.org
SUMMARY:Update from Albireo: Odevixibat
DESCRIPTION:
URL:https://www.pfic.org/event/update-from-albireo-odevixibat/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201002T193000
DTEND;TZID=UTC:20201002T200000
DTSTAMP:20260403T210402
CREATED:20200919T200310Z
LAST-MODIFIED:20200919T203625Z
UID:88833-1601667000-1601668800@www.pfic.org
SUMMARY:Update from Mirum: Maralixibat
DESCRIPTION:
URL:https://www.pfic.org/event/update-from-mirum-maralixibat/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201002T020000
DTEND;TZID=UTC:20201002T030000
DTSTAMP:20260403T210402
CREATED:20200913T223124Z
LAST-MODIFIED:20200919T203136Z
UID:88774-1601604000-1601607600@www.pfic.org
SUMMARY:Ambassador Hour-Global
DESCRIPTION:
URL:https://www.pfic.org/event/ambassador-hour-global/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201001T193000
DTEND;TZID=UTC:20201001T203000
DTSTAMP:20260403T210402
CREATED:20200913T223017Z
LAST-MODIFIED:20200919T203205Z
UID:88772-1601580600-1601584200@www.pfic.org
SUMMARY:Ambassador Hour-Americas
DESCRIPTION:
URL:https://www.pfic.org/event/ambassador-hour-americas/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Advocacy-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200929T150000
DTEND;TZID=UTC:20200929T160000
DTSTAMP:20260403T210402
CREATED:20200913T222316Z
LAST-MODIFIED:20200919T202647Z
UID:88768-1601391600-1601395200@www.pfic.org
SUMMARY:WEBINAR Transplant: Life After
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-transplant-life-after/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200929T140000
DTEND;TZID=UTC:20200929T150000
DTSTAMP:20260403T210402
CREATED:20200913T222237Z
LAST-MODIFIED:20200919T202721Z
UID:88766-1601388000-1601391600@www.pfic.org
SUMMARY:WEBINAR Transplant: Complications of by subtype
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-transplant-complications-of-by-subtype/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200928T150000
DTEND;TZID=UTC:20200928T160000
DTSTAMP:20260403T210402
CREATED:20200913T222127Z
LAST-MODIFIED:20200919T202753Z
UID:88764-1601305200-1601308800@www.pfic.org
SUMMARY:WEBINAR Surgical Management of PFIC: Diversions and Transplant
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-surgical-management-of-pfic-diversions-and-transplant/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200928T140000
DTEND;TZID=UTC:20200928T150000
DTSTAMP:20260403T210402
CREATED:20200913T222435Z
LAST-MODIFIED:20200919T202826Z
UID:88761-1601301600-1601305200@www.pfic.org
SUMMARY:WEBINAR Medical Management of PFIC: Nutrition and Medications
DESCRIPTION:
URL:https://www.pfic.org/event/webinar-medical-management-of-pfic-nutrition-and-medications/
CATEGORIES:Educational Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/Educational-Series-Graphic-scaled.jpg
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191005
DTEND;VALUE=DATE:20191006
DTSTAMP:20260403T210402
CREATED:20200217T155028Z
LAST-MODIFIED:20200303T171704Z
UID:86713-1570233600-1570319999@www.pfic.org
SUMMARY:PFIC Awareness Day 2019
DESCRIPTION:Inspired by our children and brought to life by our board members\, this day is dedicated to igniting a fire in our community and bringing awareness to the debilitating itch that PFIC has on our children\, our families and our lives. \nOn October 5\, 2019 the PFIC Advocacy and Resource Network inspired the first annual PFIC Awareness Day. On this day\, members of our community hosted individual fundraisers and awareness efforts in their own personal communities. In collaboration with Life Gave Lemons\, the PFIC Network provided toolkits to the first 25 members of our community who expressed interest in hosting a fundraiser. Toolkits included stickers\, bracelets\, pens and information on how to create your own personal awareness day. Those who did not host fundraisers still were involved in spreading awareness on social media by introducing themselves and their PFIC story with the #pficawareness and #stoptheitch. We look forward to building on this day next year as we plan for the second PFIC Awareness Day!
URL:https://www.pfic.org/event/pfic-awareness-day-2019/
CATEGORIES:Past Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190621T080000
DTEND;TZID=UTC:20190625T170000
DTSTAMP:20260403T210402
CREATED:20200217T154830Z
LAST-MODIFIED:20200228T135405Z
UID:86710-1561104000-1561482000@www.pfic.org
SUMMARY:2019 Family Conference
DESCRIPTION:The PFIC Family Conference was the first ever opportunity for PFIC families worldwide to get together at one event. Thank you to all who traveled to attend\, the weekend was extremely special! \nThis conference was made possible by the extreme generosity of the Allagille’s Syndrome Alliance who allowed us to join in their weekend. Also\, a very special thank you to our Presenting Sponsor\, Albireo Pharma and our supporting sponsor\, Mirum Pharmaceuticals. Their support enabled 22 families struggling with PFIC to join together in one place.
URL:https://www.pfic.org/event/2019-family-conference/
LOCATION:Cincinnati\, Ohio\, Cincinnati\, Ohio\, USA
CATEGORIES:Past Events
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFICFamilyConferenceProgramfinal-1.jpg
END:VEVENT
END:VCALENDAR