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X-WR-CALDESC:Events for PFIC
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DTSTART:20240101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250220T180000
DTEND;TZID=UTC:20250220T193000
DTSTAMP:20260506T200516
CREATED:20250115T162407Z
LAST-MODIFIED:20250115T162407Z
UID:109931-1740074400-1740079800@www.pfic.org
SUMMARY:February IMPACT Focus Group
DESCRIPTION:Join us for our next Focus Group in February!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Thursday\, February 20th at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now!
URL:https://www.pfic.org/event/february-impact-focus-group-2/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250228T000000
DTEND;TZID=UTC:20250228T233000
DTSTAMP:20260506T200516
CREATED:20250109T172913Z
LAST-MODIFIED:20250109T172913Z
UID:109925-1740700800-1740785400@www.pfic.org
SUMMARY:Rare Disease Day
DESCRIPTION:Rare Disease Day is the global movement for rare diseases\, working towards equity in social opportunity\, healthcare\, and access to diagnosis and therapies for people living with a rare disease. Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. It was created in 2008 by EURORDIS and over 60 national alliance patient organisation partners.
URL:https://www.pfic.org/event/rare-disease-day-2/
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