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X-WR-CALDESC:Events for PFIC
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DTSTART;TZID=Asia/Karachi:20220903T130000
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DTSTAMP:20260501T070311
CREATED:20220905T181143Z
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UID:94751-1662210000-1662213600@www.pfic.org
SUMMARY:Project REACH – Pakistan
DESCRIPTION:Project REACH (Research\, Education\, Advocacy\, Collaboration\, and Hope)\, an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. \nThis project consists of a three-part workshop series leveraging interpretation services\, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September\, we will be executing the first two REACH workshop series – a series for patients in India\, and a separate series for Pakistan. \nAre you a patient\, caregiver\, or healthcare provider in these countries? Join us on Zoom!!! Interpreters for Hindi and Urdu will be available. Contact melissa@pfic.org to sign-up.
URL:https://www.pfic.org/event/project-reach-pakistan/2022-09-03/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFIC-REACH-Flyer-Pakistan_ur-scaled.jpg
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DTSTART;TZID=Asia/Kolkata:20220904T103000
DTEND;TZID=Asia/Kolkata:20220904T113000
DTSTAMP:20260501T070311
CREATED:20220905T181555Z
LAST-MODIFIED:20220914T144913Z
UID:94757-1662287400-1662291000@www.pfic.org
SUMMARY:Project REACH – India
DESCRIPTION:Project REACH (Research\, Education\, Advocacy\, Collaboration\, and Hope)\, an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. \nThis project consists of a three-part workshop series leveraging interpretation services\, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September\, we will be executing the first two REACH workshop series – a series for patients in India\, and a separate series for Pakistan. \nAre you a patient\, caregiver\, or healthcare provider in these countries? Join us on Zoom!!! Interpreters for Hindi and Urdu will be available. Contact melissa@pfic.org to sign-up.
URL:https://www.pfic.org/event/project-reach-india/2022-09-04/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFIC-REACH-Flyer-India_hi-scaled.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220917T150000
DTEND;TZID=UTC:20220917T160000
DTSTAMP:20260501T070311
CREATED:20220906T171741Z
LAST-MODIFIED:20220914T145118Z
UID:94763-1663426800-1663430400@www.pfic.org
SUMMARY:Mental Health Support Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients\, caregivers\, and family members are invited to join. Register for the session here: https://bit.ly/3eCb2LP \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-session/
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