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X-ORIGINAL-URL:https://www.pfic.org
X-WR-CALDESC:Events for PFIC
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DTSTART:20230101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20241001T000000
DTEND;TZID=UTC:20241031T233000
DTSTAMP:20260403T212527
CREATED:20241016T194834Z
LAST-MODIFIED:20241016T194834Z
UID:109827-1727740800-1730417400@www.pfic.org
SUMMARY:PFIC Awareness Month
DESCRIPTION:PFIC Awareness Day is October 5th\, but we know this disease deserves more than a day. So here at PFIC Network\, the entire month of October will be PFIC Awareness Month. All month long we will be raising awareness about PFIC and raising funds for PFIC research and the support services you have come to love.
URL:https://www.pfic.org/event/pfic-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241005
DTEND;VALUE=DATE:20241006
DTSTAMP:20260403T212527
CREATED:20240523T020806Z
LAST-MODIFIED:20240708T131335Z
UID:98559-1728086400-1728172799@www.pfic.org
SUMMARY:2024 PFIC Awareness Day
DESCRIPTION:Every year on October 5th\, we recognize\, share\, and support the PFIC community in hopes for a better future for those we love. \nVisit our PFIC Awareness Day page to learn more about how you can get involved!
URL:https://www.pfic.org/event/2024-pfic-awareness-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241009T190000
DTEND;TZID=UTC:20241009T200000
DTSTAMP:20260403T212527
CREATED:20240905T190651Z
LAST-MODIFIED:20240905T202053Z
UID:109650-1728500400-1728504000@www.pfic.org
SUMMARY:Kids Club- Official Relaunch Zoom Call
DESCRIPTION:We are so excited to announce the official launch of the PFIC Network’s Kids Club\, a gathering space for teens and tweens living with PFIC. \n \nWhat is Kids Club? \nKids Club is a virtual gathering of teens and tweens that will take place via WhatsApp and Zoom. WhatsApp is a free messaging app that allows participants to share text-based messages\, pictures\, and emojis within a group. The Kids Club WhatsApp group will be a closed group\, meaning that participants must be added by a group admin. This helps protect kids from spammers\, scammers\, and other unsavory types. If you would like to take further steps to protect your child’s privacy on WhatsApp\, you can learn about parental controls here. Lisa Crompton (PFIC Network Program Associate\, as well as a PFIC parent) and Lisa Jensen (Support Group Facilitator) will be group admins\, along with teen volunteer extraordinaire\, Cadence Crompton. There are no hard and fast age rules for WhatsApp\, so if you feel that your child is mature enough to benefit from participating in casual group conversations with other kids with PFIC\, then we hope to see them there!  \nBeginning in October\, Kids Club will also host monthly Zoom calls for teens and older tweens (suggested age 11+). Lisa Jensen will facilitate these calls\, with the aim of handing more and more leadership and autonomy to the kids over time. Calls will include games\, icebreakers\, casual conversation\, and–depending on the interests of participants–opportunities for advocacy and outreach. The first call is scheduled for Wednesday\, October 9\, 7:00-8:00 PM EDT. \nRegister Today!
URL:https://www.pfic.org/event/kids-club-official-relaunch-zoom-call/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241022T180000
DTEND;TZID=UTC:20241022T193000
DTSTAMP:20260403T212527
CREATED:20240919T185829Z
LAST-MODIFIED:20240919T185829Z
UID:109690-1729620000-1729625400@www.pfic.org
SUMMARY:PFIC IMPACT October Focus Group Meeting
DESCRIPTION:Join us for our next Focus Group in October!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Tuesday\, October 22nd at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now!
URL:https://www.pfic.org/event/pfic-impact-october-focus-group-meeting/
CATEGORIES:Advocacy Events,Community Calls
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241102T190000
DTEND;TZID=UTC:20241102T200000
DTSTAMP:20260403T212527
CREATED:20241016T194035Z
LAST-MODIFIED:20241016T194035Z
UID:109825-1730574000-1730577600@www.pfic.org
SUMMARY:PFIC Kids Club Meeting-November 2024
DESCRIPTION:Are you a teen or tween with PFIC or BRIC? Join us on November 2nd for our next Kids Club call! \nRegister today! \nWhat is Kids Club? \nKids Club is a virtual gathering of teens and tweens that will take place via WhatsApp and Zoom. WhatsApp is a free messaging app that allows participants to share text-based messages\, pictures\, and emojis within a group. The Kids Club WhatsApp group will be a closed group\, meaning that participants must be added by a group admin. This helps protect kids from spammers\, scammers\, and other unsavory types. If you would like to take further steps to protect your child’s privacy on WhatsApp\, you can learn about parental controls here. Lisa Crompton (PFIC Network Program Associate\, as well as a PFIC parent) and Lisa Jensen (Support Group Facilitator) will be group admins\, along with teen volunteer extraordinaire\, Cadence Crompton. There are no hard and fast age rules for WhatsApp\, so if you feel that your child is mature enough to benefit from participating in casual group conversations with other kids with PFIC\, then we hope to see them there! \nBeginning in October\, Kids Club will also host monthly Zoom calls for teens and older tweens (suggested age 11+). Lisa Jensen will facilitate these calls\, with the aim of handing more and more leadership and autonomy to the kids over time. Calls will include games\, icebreakers\, casual conversation\, and–depending on the interests of participants–opportunities for advocacy and outreach. \nIf you have questions\, or would like to be added to the Whatsapp group\, please contact us!
URL:https://www.pfic.org/event/pfic-kids-club-meeting-november-2024/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241218T180000
DTEND;TZID=UTC:20241218T193000
DTSTAMP:20260403T212527
CREATED:20241113T030954Z
LAST-MODIFIED:20241113T030954Z
UID:109881-1734544800-1734550200@www.pfic.org
SUMMARY:December IMPACT Focus Group
DESCRIPTION:Join us for our next Focus Group in December!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Wednesday\, December 18th at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now!
URL:https://www.pfic.org/event/december-impact-focus-group/
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