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UID:97952-1697655600-1697659200@www.pfic.org
SUMMARY:PFIC Parents & Caregivers Virtual Support Group
DESCRIPTION:  \n \nVirtual PFIC Support Groups provide a safe and welcoming space in which patients\, family members and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. All patients\, caregivers\, and family members are invited to join. \nRegister Now!
URL:https://www.pfic.org/event/pfic-parents-caregivers-virtual-support-group/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20231115T190000
DTEND;TZID=UTC:20231115T200000
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CREATED:20231011T175419Z
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UID:97957-1700074800-1700078400@www.pfic.org
SUMMARY:PFIC Parents & Caregivers Virtual Support Group
DESCRIPTION:  \n \nVirtual PFIC Support Groups provide a safe and welcoming space in which patients\, family members and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. All patients\, caregivers\, and family members are invited to join. \nRegister Now!
URL:https://www.pfic.org/event/97957/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20231204
DTEND;VALUE=DATE:20231205
DTSTAMP:20260404T225956
CREATED:20231129T160533Z
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UID:98116-1701648000-1701734399@www.pfic.org
SUMMARY:IMPACT Module 2 Launch Day
DESCRIPTION:Module 2 of Project IMPACT is now live! Complete it today! \nIf you are a PFIC patient (ages 14+)\, parent\, healthcare provider\, or researcher\, we want YOU to participate!  \nIMPACT modules are designed to help PFIC families AND clinicians & researchers learn more about patient-centered coutcomes research (PCOR). Having a shared base of PCOR knowledge helps us all be prepared to have important conversations about what PCOR studies could look like in PFIC. \nThere will be a total of 6 modules throughout Project IMPACT. Each one consists of a learning module and a feedback survey and takes about 25 min to complete. Module 1 is also still available if you haven’t completed it yet.
URL:https://www.pfic.org/event/impact-module-2-launch-day/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231220T180000
DTEND;TZID=America/New_York:20231220T193000
DTSTAMP:20260404T225956
CREATED:20231011T173633Z
LAST-MODIFIED:20231201T175802Z
UID:97948-1703095200-1703100600@www.pfic.org
SUMMARY:Project IMPACT Focus Group Meeting
DESCRIPTION:  \n \nAre you a PFIC patient\, caregiver\, researcher or clinician? Have you completed the Project IMPACT Module 2 learning activity? If so\, we hope you can join us for a virtual focus group to discuss the topic of Module 2\, “How can I contribute to patient centered outcomes research?”. Completing Module 2 prior to the focus group helps ensure that we have a shared based of knowledge to help stimulate meaningful conversations. \nThe learning modules and focus groups are important parts of Project IMPACT\, our ongoing patient-centered outcomes research education project. This project is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (EASO-30455). \n  \nRegister for the focus group now!
URL:https://www.pfic.org/event/project-impact-focus-group-meeting/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240220T180000
DTEND;TZID=America/New_York:20240220T193000
DTSTAMP:20260404T225956
CREATED:20240131T170411Z
LAST-MODIFIED:20240131T170411Z
UID:98224-1708452000-1708457400@www.pfic.org
SUMMARY:Project IMPACT Focus Group Meeting
DESCRIPTION:Register for the February Focus Group now!\nThis is the last focus group meeting before we come together at the 2024 PFIC Family & Scientific Conference in April! During the meeting\, we will get a serious sneak peak of our new PFIC treatment information web platform\, and provide one more chance for everyone to share their feedback before it goes into its final development phase. \nWe will also do an exciting exercise together to prepare for an IMPACT activity at the Conference. Our plan of action: begin creating a list of community-identified priorities to focus on in future PFIC research.  \nYou do not need to have attended a previous focus group to join this one! Project IMPACT is our ongoing patient-centered outcomes research education project. Check out the IMPACT project webpage for more info on the project. Interested in getting involved and getting up to speed? Click the “Participate” button on the webpage to take Modules 1 & 2 today! \nThis project is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (EASO-30455).
URL:https://www.pfic.org/event/project-impact-focus-group-february/
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