PFIC

Grandparents & Non-Caregiver Support Group
2022-11-12 15:00 - 16:00 UTC
Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close friend of a PFIC patient, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind, but all non-caregiving family members and friends are welcome.
Register for the session here: https://us06web.zoom.us/meeting/register/tZAtcuytqjotG9S7CETiXzb2BGqaMOZCer6n

Patient Support Group
2022-12-10 12:00 - 13:00
What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Having a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZIof-uprzwvH9TwyWR9VkDra2yrkD2cR-DN
Hosted by Lisa Jensen. Read Lisa’s most recent blog post here: What to do when nobody gets it.

Parent & Caregiver Support Group
2022-12-10 13:30 - 14:30
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Parenting a child with a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZIpcuivrz8qHdUmiVRh6FlFNxiuwR-91TD5
Read Lisa’s most recent blog post here: What to do when nobody gets it.

Grandparents & Non-Caregiver Support Group
2022-12-10 15:00 - 16:00
Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close friend of a PFIC patient, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind, but all non-caregiving family members and friends are welcome.
Register for the session here: https://us06web.zoom.us/meeting/register/tZwvcOipqD8sEteBhsNDdB6FzutC7kSj88vp

Hosted by Lisa Jensen. Read Lisa’s most recent blog post here: What to do when nobody gets it.

Patient Support Group
2023-01-07 12:00 - 13:00
What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Having a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZwscumrpjopHNKQiUCQ9Ngfab5_y7DQBqnO

Grandparent Support Group
2023-01-07 15:00 - 16:00
Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close friend of a PFIC patient, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind, but all non-caregiving family members and friends are welcome.
Register for the session here: https://us06web.zoom.us/meeting/register/tZcqcOyhrD8vH90fWFNvhSJAVpWs4iEKvOLj

Parent and Caregiver Support Group
2023-07-08 13:00 - 14:00
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Parenting a child with a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All parents and caregivers are invited to join. Register for the session here: Saturday July 8, 1 PM EST

Grandparent Support Group
2023-07-08 15:00 - 16:00
Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close friend of a PFIC patient, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind, but all non-caregiving family members and friends are welcome.
Register for the session here: https://us06web.zoom.us/meeting/register/tZYlf-uuqTMoGdcdRROo8-ZyhoZMRSZR4ldR

Parent and Caregiver Support Group
2023-08-19 13:00 - 14:00
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Parenting a child with a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZcld-CuqzopHtSDCaTTyKm_AysjRq2SX7N7

Patient Support Group
2023-08-19 15:00 - 16:00
What the support group is about – The group offers a safe and welcoming space in which adult PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Having a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZ0vd-ugpjwoEt04tryr5hDNPzha3vwiYp_m

Parent & Caregiver Support Group
2023-09-23 13:00 - 14:00
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support.
Why it’s important – Parenting a child with a rare disease can be exhausting, overwhelming, and isolating. It’s important to have a space in which you feel seen, heard, and valued. Our goal is to make this support group into just such a space, so that participants leave feeling connected, understood, and recharged.
All parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZYrdeGgpj0rGdB7pvklTP2fnWnO8GjxpeRi

PFIC Awareness Day
2023-10-05
The fifth annual PFIC Awareness Day is October 5, 2023. The PFIC community around the world will hold advocacy and awareness events to honor patients, families, and caregivers. Awareness Day is used to spread information about our rare disease to help our supporter community grow, and help us find more patients who need help and support.

PFIC Parents & Caregivers Virtual Support Group
2023-10-18 19:00 - 20:00
Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and offer one another support. All patients, caregivers, and family members are invited to join.
Register Now!
