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X-WR-CALNAME:PFIC
X-ORIGINAL-URL:https://www.pfic.org
X-WR-CALDESC:Events for PFIC
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BEGIN:VTIMEZONE
TZID:UTC
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DTSTART:20210101T000000
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DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220409
DTEND;VALUE=DATE:20220410
DTSTAMP:20260403T182648
CREATED:20220401T181721Z
LAST-MODIFIED:20220401T181721Z
UID:93950-1649462400-1649548799@www.pfic.org
SUMMARY:International Alliance Meetings
DESCRIPTION:Formerly known as the Global Advisory Council.  \nWe invite you to join us at the International Alliance meeting. \nThis is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to attend. Th first is at 6 AM EST(USA) and the second will be at 3 PM EST(USA) on the same day.  \nRegister for the meetings here:\n6 AM EST(USA) Meeting: https://us06web.zoom.us/meeting/register/tZUucumqrT8oGtOE8em4ezBYAA2ljChS2MXE \n3 PM EST(USA) Meeting: https://us06web.zoom.us/meeting/register/tZcrd-6grjwuE9WIyGs3Six6u-wv2Vb-O-Kv
URL:https://www.pfic.org/event/international-alliance-meetings/2022-04-09/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220429
DTEND;VALUE=DATE:20220501
DTSTAMP:20260403T182648
CREATED:20211202T162804Z
LAST-MODIFIED:20211207T152651Z
UID:92777-1651190400-1651363199@www.pfic.org
SUMMARY:2022 Scientific Conference
DESCRIPTION:The PFIC Network will be hosting a scientific meeting for researchers\, patients\, providers and industry partners on April 29-30 in Pittsburg\, Pennsylvania. This will be a hybrid meeting with opportunities to present research both in person and virtual.  \nImportant Dates:  \nAbstract submission deadline: January 21\, 2020\nFinal decision on presentations: January 28\, 2020 \nSubmit abstract: Click Here \nSee event home: Click Here \nSee the venue: Click Here
URL:https://www.pfic.org/event/2022-scientific-conference/
LOCATION:Pittsburgh\, PA\, 1111 Airport Boulevard\, Pittsburgh\, Pennsylvania\, United States\, 15231\, Pittsburgh\, PA\, 15231\, United States
CATEGORIES:Conferences,Educational Webinar Series
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220628T160000
DTEND;TZID=UTC:20220628T170000
DTSTAMP:20260403T182648
CREATED:20220621T134945Z
LAST-MODIFIED:20220621T134945Z
UID:94329-1656432000-1656435600@www.pfic.org
SUMMARY:Kids Club Community Call (Moved from the 21st)
DESCRIPTION:Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything\, play games\, and have fun in the PFIC Community.
URL:https://www.pfic.org/event/kids-club-community-call-moved-from-the-21st/
CATEGORIES:Community Calls
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20220903T130000
DTEND;TZID=Asia/Karachi:20220903T140000
DTSTAMP:20260403T182648
CREATED:20220905T181143Z
LAST-MODIFIED:20220914T144821Z
UID:94751-1662210000-1662213600@www.pfic.org
SUMMARY:Project REACH – Pakistan
DESCRIPTION:Project REACH (Research\, Education\, Advocacy\, Collaboration\, and Hope)\, an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. \nThis project consists of a three-part workshop series leveraging interpretation services\, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September\, we will be executing the first two REACH workshop series – a series for patients in India\, and a separate series for Pakistan. \nAre you a patient\, caregiver\, or healthcare provider in these countries? Join us on Zoom!!! Interpreters for Hindi and Urdu will be available. Contact melissa@pfic.org to sign-up.
URL:https://www.pfic.org/event/project-reach-pakistan/2022-09-03/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFIC-REACH-Flyer-Pakistan_ur-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20220904T103000
DTEND;TZID=Asia/Kolkata:20220904T113000
DTSTAMP:20260403T182648
CREATED:20220905T181555Z
LAST-MODIFIED:20220914T144913Z
UID:94757-1662287400-1662291000@www.pfic.org
SUMMARY:Project REACH – India
DESCRIPTION:Project REACH (Research\, Education\, Advocacy\, Collaboration\, and Hope)\, an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. \nThis project consists of a three-part workshop series leveraging interpretation services\, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September\, we will be executing the first two REACH workshop series – a series for patients in India\, and a separate series for Pakistan. \nAre you a patient\, caregiver\, or healthcare provider in these countries? Join us on Zoom!!! Interpreters for Hindi and Urdu will be available. Contact melissa@pfic.org to sign-up.
URL:https://www.pfic.org/event/project-reach-india/2022-09-04/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFIC-REACH-Flyer-India_hi-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220917T150000
DTEND;TZID=UTC:20220917T160000
DTSTAMP:20260403T182648
CREATED:20220906T171741Z
LAST-MODIFIED:20220914T145118Z
UID:94763-1663426800-1663430400@www.pfic.org
SUMMARY:Mental Health Support Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients\, caregivers\, and family members are invited to join. Register for the session here: https://bit.ly/3eCb2LP \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221001T150000
DTEND;TZID=UTC:20221001T160000
DTSTAMP:20260403T182648
CREATED:20220928T134939Z
LAST-MODIFIED:20220928T134939Z
UID:94923-1664636400-1664640000@www.pfic.org
SUMMARY:Grandparents & Non-Caregiver Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZ0kdOCorzwsEtDBBI74LBL-HcXP8WiaP3_V
URL:https://www.pfic.org/event/grandparents-non-caregiver-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T120000
DTEND;TZID=UTC:20221015T130000
DTSTAMP:20260403T182648
CREATED:20220928T135340Z
LAST-MODIFIED:20221005T144617Z
UID:94927-1665835200-1665838800@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZMkcOygrzkuHNzfIXb6Yg7d-XmIEQhOwQzS \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-group-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T133000
DTEND;TZID=UTC:20221015T143000
DTSTAMP:20260403T182648
CREATED:20220928T135501Z
LAST-MODIFIED:20221005T144711Z
UID:94929-1665840600-1665844200@www.pfic.org
SUMMARY:Parent & Caregiver Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZMvc-yorDopGNRLcDbJjV3ED3EB2qLYE-fg \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-group-session-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221029T150000
DTEND;TZID=UTC:20221029T160000
DTSTAMP:20260403T182648
CREATED:20221005T145143Z
LAST-MODIFIED:20221005T145143Z
UID:95070-1667055600-1667059200@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZEpdeCgrTMoHNVh4DOIxjSS4GvM9S0bOkfI \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/patient-support-group-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T120000
DTEND;TZID=UTC:20221112T130000
DTSTAMP:20260403T182648
CREATED:20221005T145248Z
LAST-MODIFIED:20221005T145248Z
UID:95072-1668254400-1668258000@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZwsfu-rqTMpGt12zV6huDRpM1XyeZXVNuKa \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/patient-support-group-session-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T133000
DTEND;TZID=UTC:20221112T143000
DTSTAMP:20260403T182648
CREATED:20221005T145026Z
LAST-MODIFIED:20221005T145026Z
UID:95068-1668259800-1668263400@www.pfic.org
SUMMARY:Parent & Caregiver Support Group
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZYof-qppzojG9Yx8Jz7rQmgcWGwjZY6KA9A  \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/parent-caregiver-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T150000
DTEND;TZID=UTC:20221112T160000
DTSTAMP:20260403T182648
CREATED:20220928T135056Z
LAST-MODIFIED:20220928T135056Z
UID:94925-1668265200-1668268800@www.pfic.org
SUMMARY:Grandparents & Non-Caregiver Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZAtcuytqjotG9S7CETiXzb2BGqaMOZCer6n
URL:https://www.pfic.org/event/grandparents-non-caregiver-support-group-2/
END:VEVENT
END:VCALENDAR