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BEGIN:VEVENT
DTSTART;VALUE=DATE:20210623
DTEND;VALUE=DATE:20210627
DTSTAMP:20260403T201359
CREATED:20210318T151856Z
LAST-MODIFIED:20210318T172354Z
UID:91112-1624406400-1624751999@www.pfic.org
SUMMARY:EASL International Liver Congress 2021
DESCRIPTION:We will be attending the virtual event offered by EASL. Patients and affiliates are encouraged to join to learn more! Details taken from website: \n\n\nThe International Liver Congress™ 2021\, our flagship congress\, is delivered to you on our online learning platform\, EASL Campus. ILC 2021 is all about beating liver disease together. We will tackle this challenge from multiple perspectives\, drawing on multidisciplinary expertise. ILC 2021 will be your live EASL Campus experience\, enabling you to broaden your knowledge and build bridges\, between people and areas of expertise. Getting onto EASL Campus offers you the perfect mix of mingling and learning. \nWe are pleased to announce new dates: ILC 2021 will take place from Wednesday to Saturday\, 23–26 June.   \nCalling upon our international\, multi-generational network and employing a range of learning methods\, we will draw inspiration from the evolution of science. Together.
URL:https://www.pfic.org/event/easl-international-liver-congress-2021/
CATEGORIES:Conferences
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210716
DTEND;VALUE=DATE:20210718
DTSTAMP:20260403T201359
CREATED:20210318T121814Z
LAST-MODIFIED:20210318T121814Z
UID:91099-1626393600-1626566399@www.pfic.org
SUMMARY:Virtual Family Conference
DESCRIPTION:Thanks to the ALGSA and MyCityMed\, PFIC will be co-hosting a 2021 virtual family conference. There will be ways to learn more about PFIC and what’s new in the research of PFIC\, opportunities to learn more about how you can advocate PFIC\, and ways to interact with other patients\, families\, doctors\, scientists and industry professionals. We hope you will join us! \nRegistration will be coming soon!
URL:https://www.pfic.org/event/virtual-family-conference/
CATEGORIES:Conferences
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210913T160000
DTEND;TZID=UTC:20210913T170000
DTSTAMP:20260403T201359
CREATED:20210907T122813Z
LAST-MODIFIED:20210907T122954Z
UID:92247-1631548800-1631552400@www.pfic.org
SUMMARY:Kids Club-Zoom Chat
DESCRIPTION:This zoom chat is very special. It is a chat room hosted by kids with PFIC\, for kids with PFIC. The hosts\, Cade (17)\, Cadence (11) and Cedar (9)\, have all been through/are going through PFIC and understand what it is like to be a kid who is itchy\, who has had multiple hospitalizations\, who has had a liver transplant\, who has to take many medications\, or whose parents just keep talking about PFIC. \nThese kids are very special. Starting on September 13 @ 4 pm EST (USA)\, they are going to meet via zoom. They enjoy getting together on zoom to do art together\, have show and tell\, talk about their favorite activities\, or just hang out. They are also open to talking with other kids about having PFIC. \nKids of all ages\, from all areas of the world are welcome. PFIC Network can help with language support\, time zone conversion\, or tech facilitation if needed\, so please contact lisa@pfic.org if you or your child would like to join but may need additional assistance
URL:https://www.pfic.org/event/kids-club-zoom-chat/
CATEGORIES:Community Calls
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210928
DTEND;VALUE=DATE:20210930
DTSTAMP:20260403T201359
CREATED:20210318T160237Z
LAST-MODIFIED:20210318T160237Z
UID:91123-1632787200-1632959999@www.pfic.org
SUMMARY:Global Genes Rare Patient Advocacy Summit
DESCRIPTION:The PFIC Network will be registering for and attending the Global Genes Rare Patient Advocacy Summit. Patients\, ambassadors and advocates are encourage to reach out to learn more and join us! Information taken from website: \nEach year Global Genes convenes one of the world’s largest gatherings of rare disease patients\, caregivers\, advocates\, healthcare professionals\, researchers\, partners and allies. After going virtual in 2020 with Global Genes LIVE! A RARE Patient Advocacy (un)Summit\, we are looking forward to seeing you all in person in San Diego 2021. \nJoin us for a variety of interactive and educational events\, meet-ups\, workshops and networking opportunities. Here you’ll have the  opportunity to connect and engage with others in the rare disease community\, while experiencing the sense of community and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations\, best practices for advocating on an individual and organizational level\, and actionable strategies they can implement immediately to accelerate change.
URL:https://www.pfic.org/event/global-genes-rare-patient-advocacy-summit/
CATEGORIES:Advocacy Events,Conferences
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20210929T150000
DTEND;TZID=America/Halifax:20210929T160000
DTSTAMP:20260403T201359
CREATED:20210925T144919Z
LAST-MODIFIED:20210925T145106Z
UID:92423-1632927600-1632931200@www.pfic.org
SUMMARY:Impact of NICE Decision on PFIC Patients
DESCRIPTION:There has been a lot of talk around the recent NICE decision to not recommend reimbursement of odevixibat for treatment of patients with PFIC in the UK\, England and Wales. \nPFIC Network has been working with other advocacy organizations\, PFIC Specialists and Albireo to understand what this means for patients in the UK and abroad. \nDr. Richard Thompson of Kings College London will join PFIC Network leaders to give a brief informational session with an opportunity for Q&A session. \nRegister in advance for this meeting at this link. Language support and time zone support is available\, email info@pfic.org if requested. https://us06web.zoom.us/meeting/register/tZcucuuoqTwoHdcbAfDCm78GJ2aWiq7mUGv3
URL:https://www.pfic.org/event/impact-of-nice-decision-on-pfic-patients/
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211016T000000
DTEND;TZID=UTC:20211016T000000
DTSTAMP:20260403T201359
CREATED:20210128T044635Z
LAST-MODIFIED:20210128T044635Z
UID:90394-1634342400-1634342400@www.pfic.org
SUMMARY:Global Advisory Board
DESCRIPTION:Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together\, we hope that we can create solutions to fit all resource gaps.
URL:https://www.pfic.org/event/global-advisory-board-3/
CATEGORIES:Global Advisory Board
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211018T160000
DTEND;TZID=UTC:20211018T170000
DTSTAMP:20260403T201359
CREATED:20211014T180401Z
LAST-MODIFIED:20211014T180401Z
UID:92538-1634572800-1634576400@www.pfic.org
SUMMARY:Kids Club Community Call
DESCRIPTION:Join in on the Kids Club Community call starting at 4 PM EST!
URL:https://www.pfic.org/event/kids-club-community-call/
CATEGORIES:Community Calls
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211019
DTEND;VALUE=DATE:20211020
DTSTAMP:20260403T201359
CREATED:20211014T180844Z
LAST-MODIFIED:20211014T180921Z
UID:92540-1634601600-1634687999@www.pfic.org
SUMMARY:PFIC Network State of the Union Address
DESCRIPTION:The Board of Directors will be hosting a Facebook Live event to update the community on PFIC Network events\, organization updates and milestones we have accomplished. We will also go over future plans we have in the works for the upcoming calendar year.
URL:https://www.pfic.org/event/pfic-network-state-of-the-union-address/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211112
DTEND;VALUE=DATE:20211117
DTSTAMP:20260403T201359
CREATED:20210318T155745Z
LAST-MODIFIED:20210318T172231Z
UID:91119-1636675200-1637107199@www.pfic.org
SUMMARY:AASLD The Liver Meeting 2021
DESCRIPTION:The PFIC Network will be registering to attend the AASLD Liver Meeting\, 2021. Patients and affiliates are encouraged to sign up to learn more! More details on website:\nDATE OF EVENT\nFriday\, November 12\, 2021 – 8:00 am –\nTuesday\, November 16\, 2021 – 3:00 pm\n\n\nLOCATION\n\nAnaheim\, CaliforniaUnited States
URL:https://www.pfic.org/event/aasld-the-liver-meeting-2021/
CATEGORIES:Conferences
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211204T000000
DTEND;TZID=UTC:20211204T000000
DTSTAMP:20260403T201359
CREATED:20210128T044725Z
LAST-MODIFIED:20210128T044725Z
UID:90396-1638576000-1638576000@www.pfic.org
SUMMARY:Global Advisory Board
DESCRIPTION:Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together\, we hope that we can create solutions to fit all resource gaps.
URL:https://www.pfic.org/event/global-advisory-board-4/
CATEGORIES:Global Advisory Board
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20211213T160000
DTEND;TZID=America/Kentucky/Louisville:20211213T170000
DTSTAMP:20260403T201359
CREATED:20211021T150921Z
LAST-MODIFIED:20211210T171828Z
UID:92567-1639411200-1639414800@www.pfic.org
SUMMARY:Kids Club Community Call
DESCRIPTION:Join in on the PFIC Kids Club community call with your PFIC Kid! It is a ton of fun for the kids as they learn they are not alone. \nThe call for December is themed around the holidays! Click the link below to join. \nhttps://www.pfic.org/pfic-community-zoom-room/ \n 
URL:https://www.pfic.org/event/kids-club-community-call-2/
CATEGORIES:Community Calls
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260403T201359
CREATED:20211213T155102Z
LAST-MODIFIED:20211213T155416Z
UID:93110-1646006400-1646092799@www.pfic.org
SUMMARY:Rare Disease Day
DESCRIPTION:Raising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \nRare disease day brings people with all rare diseases together in unity to show that just because you have a rare disease\, does not mean you are alone.
URL:https://www.pfic.org/event/rare-disease-day/
CATEGORIES:Advocacy Events
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220409
DTEND;VALUE=DATE:20220410
DTSTAMP:20260403T201359
CREATED:20220401T181721Z
LAST-MODIFIED:20220401T181721Z
UID:93950-1649462400-1649548799@www.pfic.org
SUMMARY:International Alliance Meetings
DESCRIPTION:Formerly known as the Global Advisory Council.  \nWe invite you to join us at the International Alliance meeting. \nThis is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to attend. Th first is at 6 AM EST(USA) and the second will be at 3 PM EST(USA) on the same day.  \nRegister for the meetings here:\n6 AM EST(USA) Meeting: https://us06web.zoom.us/meeting/register/tZUucumqrT8oGtOE8em4ezBYAA2ljChS2MXE \n3 PM EST(USA) Meeting: https://us06web.zoom.us/meeting/register/tZcrd-6grjwuE9WIyGs3Six6u-wv2Vb-O-Kv
URL:https://www.pfic.org/event/international-alliance-meetings/2022-04-09/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220429
DTEND;VALUE=DATE:20220501
DTSTAMP:20260403T201359
CREATED:20211202T162804Z
LAST-MODIFIED:20211207T152651Z
UID:92777-1651190400-1651363199@www.pfic.org
SUMMARY:2022 Scientific Conference
DESCRIPTION:The PFIC Network will be hosting a scientific meeting for researchers\, patients\, providers and industry partners on April 29-30 in Pittsburg\, Pennsylvania. This will be a hybrid meeting with opportunities to present research both in person and virtual.  \nImportant Dates:  \nAbstract submission deadline: January 21\, 2020\nFinal decision on presentations: January 28\, 2020 \nSubmit abstract: Click Here \nSee event home: Click Here \nSee the venue: Click Here
URL:https://www.pfic.org/event/2022-scientific-conference/
LOCATION:Pittsburgh\, PA\, 1111 Airport Boulevard\, Pittsburgh\, Pennsylvania\, United States\, 15231\, Pittsburgh\, PA\, 15231\, United States
CATEGORIES:Conferences,Educational Webinar Series
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220628T160000
DTEND;TZID=UTC:20220628T170000
DTSTAMP:20260403T201359
CREATED:20220621T134945Z
LAST-MODIFIED:20220621T134945Z
UID:94329-1656432000-1656435600@www.pfic.org
SUMMARY:Kids Club Community Call (Moved from the 21st)
DESCRIPTION:Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything\, play games\, and have fun in the PFIC Community.
URL:https://www.pfic.org/event/kids-club-community-call-moved-from-the-21st/
CATEGORIES:Community Calls
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20220903T130000
DTEND;TZID=Asia/Karachi:20220903T140000
DTSTAMP:20260403T201359
CREATED:20220905T181143Z
LAST-MODIFIED:20220914T144821Z
UID:94751-1662210000-1662213600@www.pfic.org
SUMMARY:Project REACH – Pakistan
DESCRIPTION:Project REACH (Research\, Education\, Advocacy\, Collaboration\, and Hope)\, an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. \nThis project consists of a three-part workshop series leveraging interpretation services\, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September\, we will be executing the first two REACH workshop series – a series for patients in India\, and a separate series for Pakistan. \nAre you a patient\, caregiver\, or healthcare provider in these countries? Join us on Zoom!!! Interpreters for Hindi and Urdu will be available. Contact melissa@pfic.org to sign-up.
URL:https://www.pfic.org/event/project-reach-pakistan/2022-09-03/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFIC-REACH-Flyer-Pakistan_ur-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20220904T103000
DTEND;TZID=Asia/Kolkata:20220904T113000
DTSTAMP:20260403T201359
CREATED:20220905T181555Z
LAST-MODIFIED:20220914T144913Z
UID:94757-1662287400-1662291000@www.pfic.org
SUMMARY:Project REACH – India
DESCRIPTION:Project REACH (Research\, Education\, Advocacy\, Collaboration\, and Hope)\, an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. \nThis project consists of a three-part workshop series leveraging interpretation services\, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September\, we will be executing the first two REACH workshop series – a series for patients in India\, and a separate series for Pakistan. \nAre you a patient\, caregiver\, or healthcare provider in these countries? Join us on Zoom!!! Interpreters for Hindi and Urdu will be available. Contact melissa@pfic.org to sign-up.
URL:https://www.pfic.org/event/project-reach-india/2022-09-04/
CATEGORIES:Advocacy Series
ATTACH;FMTTYPE=image/jpeg:https://www.pfic.org/wp-content/uploads/PFIC-REACH-Flyer-India_hi-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220917T150000
DTEND;TZID=UTC:20220917T160000
DTSTAMP:20260403T201359
CREATED:20220906T171741Z
LAST-MODIFIED:20220914T145118Z
UID:94763-1663426800-1663430400@www.pfic.org
SUMMARY:Mental Health Support Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients\, caregivers\, and family members are invited to join. Register for the session here: https://bit.ly/3eCb2LP \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221001T150000
DTEND;TZID=UTC:20221001T160000
DTSTAMP:20260403T201359
CREATED:20220928T134939Z
LAST-MODIFIED:20220928T134939Z
UID:94923-1664636400-1664640000@www.pfic.org
SUMMARY:Grandparents & Non-Caregiver Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZ0kdOCorzwsEtDBBI74LBL-HcXP8WiaP3_V
URL:https://www.pfic.org/event/grandparents-non-caregiver-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T120000
DTEND;TZID=UTC:20221015T130000
DTSTAMP:20260403T201359
CREATED:20220928T135340Z
LAST-MODIFIED:20221005T144617Z
UID:94927-1665835200-1665838800@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZMkcOygrzkuHNzfIXb6Yg7d-XmIEQhOwQzS \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-group-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221015T133000
DTEND;TZID=UTC:20221015T143000
DTSTAMP:20260403T201359
CREATED:20220928T135501Z
LAST-MODIFIED:20221005T144711Z
UID:94929-1665840600-1665844200@www.pfic.org
SUMMARY:Parent & Caregiver Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZMvc-yorDopGNRLcDbJjV3ED3EB2qLYE-fg \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/mental-health-support-group-session-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221029T150000
DTEND;TZID=UTC:20221029T160000
DTSTAMP:20260403T201359
CREATED:20221005T145143Z
LAST-MODIFIED:20221005T145143Z
UID:95070-1667055600-1667059200@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZEpdeCgrTMoHNVh4DOIxjSS4GvM9S0bOkfI \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/patient-support-group-session/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T120000
DTEND;TZID=UTC:20221112T130000
DTSTAMP:20260403T201359
CREATED:20221005T145248Z
LAST-MODIFIED:20221005T145248Z
UID:95072-1668254400-1668258000@www.pfic.org
SUMMARY:Patient Support Group Session
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZwsfu-rqTMpGt12zV6huDRpM1XyeZXVNuKa \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/patient-support-group-session-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T133000
DTEND;TZID=UTC:20221112T143000
DTSTAMP:20260403T201359
CREATED:20221005T145026Z
LAST-MODIFIED:20221005T145026Z
UID:95068-1668259800-1668263400@www.pfic.org
SUMMARY:Parent & Caregiver Support Group
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZYof-qppzojG9Yx8Jz7rQmgcWGwjZY6KA9A  \nHosted by Lisa Jensen. Lisa’s Bio: \nHow are you connected to PFIC?\nMy friend’s daughter has PFIC.\nWhat is your role in the network?\nI facilitate an online support group for families and individuals affected by PFIC.\nWhere are you located?\nOn a farm just outside of Lexington\, KY.\nWhat do you hope to accomplish?\nI hope to help build an active and thriving support group—one in which all members feel safe\, heard\, understood\, and valued. Living with a rare disease or loving someone with a rare disease can be overwhelming and isolating. There is so much empathy\, wisdom\, knowledge\, and experience within the PFIC community\, though. My hope is to create a space in which members can turn toward one another\, draw upon these strengths\, and heal together.\nWhat skills do you bring to the network?\nI care about people\, have a passion for mental health\, and value meaningful connection. In addition to having a Masters Degree in Counseling Psychology\, I have firsthand experience in living with a debilitating chronic illness. I created an online community for my fellow Covid-19 long-haulers\, where I have both witnessed and felt the healing that comes from being part of a group that deeply understands what you are going through.\nWhat would you sing at karaoke night?\nProbably “Landslide\,” since I can actually hit the high notes—at least on a good day!
URL:https://www.pfic.org/event/parent-caregiver-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221112T150000
DTEND;TZID=UTC:20221112T160000
DTSTAMP:20260403T201359
CREATED:20220928T135056Z
LAST-MODIFIED:20220928T135056Z
UID:94925-1668265200-1668268800@www.pfic.org
SUMMARY:Grandparents & Non-Caregiver Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZAtcuytqjotG9S7CETiXzb2BGqaMOZCer6n
URL:https://www.pfic.org/event/grandparents-non-caregiver-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221210T120000
DTEND;TZID=UTC:20221210T130000
DTSTAMP:20260403T201359
CREATED:20221125T161155Z
LAST-MODIFIED:20221125T161155Z
UID:95413-1670673600-1670677200@www.pfic.org
SUMMARY:Patient Support Group
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZIof-uprzwvH9TwyWR9VkDra2yrkD2cR-DN \nHosted by Lisa Jensen. Read Lisa’s most recent blog post here: What to do when nobody gets it.
URL:https://www.pfic.org/event/patient-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221210T133000
DTEND;TZID=UTC:20221210T143000
DTSTAMP:20260403T201359
CREATED:20221125T161326Z
LAST-MODIFIED:20221125T161326Z
UID:95416-1670679000-1670682600@www.pfic.org
SUMMARY:Parent & Caregiver Support Group
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Parenting a child with a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll parents and caregivers are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZIpcuivrz8qHdUmiVRh6FlFNxiuwR-91TD5 \nRead Lisa’s most recent blog post here: What to do when nobody gets it.
URL:https://www.pfic.org/event/parent-caregiver-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221210T150000
DTEND;TZID=UTC:20221210T160000
DTSTAMP:20260403T201359
CREATED:20221125T161714Z
LAST-MODIFIED:20221125T161917Z
UID:95418-1670684400-1670688000@www.pfic.org
SUMMARY:Grandparents & Non-Caregiver Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZwvcOipqD8sEteBhsNDdB6FzutC7kSj88vp \n\nHosted by Lisa Jensen. Read Lisa’s most recent blog post here: What to do when nobody gets it.
URL:https://www.pfic.org/event/grandparents-non-caregiver-support-group-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230107T120000
DTEND;TZID=UTC:20230107T130000
DTSTAMP:20260403T201359
CREATED:20221230T182555Z
LAST-MODIFIED:20221230T182555Z
UID:95732-1673092800-1673096400@www.pfic.org
SUMMARY:Patient Support Group
DESCRIPTION:What the support group is about – The group offers a safe and welcoming space in which PFIC patients can connect with one another\, share their experiences\, and offer one another support. \nWhy it’s important – Having a rare disease can be exhausting\, overwhelming\, and isolating. It’s important to have a space in which you feel seen\, heard\, and valued. Our goal is to make this support group into just such a space\, so that participants leave feeling connected\, understood\, and recharged. \nAll patients are invited to join. Register for the session here: https://us06web.zoom.us/meeting/register/tZwscumrpjopHNKQiUCQ9Ngfab5_y7DQBqnO
URL:https://www.pfic.org/event/patient-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230107T150000
DTEND;TZID=UTC:20230107T160000
DTSTAMP:20260403T201359
CREATED:20221230T182928Z
LAST-MODIFIED:20221230T182928Z
UID:95734-1673103600-1673107200@www.pfic.org
SUMMARY:Grandparent Support Group
DESCRIPTION:Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group\, though. If you are a non-caregiving relative or close friend of a PFIC patient\, you already know this. This support group is for YOU! We’ve created this group with grandparents in mind\, but all non-caregiving family members and friends are welcome. \nRegister for the session here: https://us06web.zoom.us/meeting/register/tZcqcOyhrD8vH90fWFNvhSJAVpWs4iEKvOLj
URL:https://www.pfic.org/event/grandparent-support-group/
END:VEVENT
END:VCALENDAR