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X-WR-CALNAME:PFIC
X-ORIGINAL-URL:https://www.pfic.org
X-WR-CALDESC:Events for PFIC
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BEGIN:VTIMEZONE
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250220T180000
DTEND;TZID=UTC:20250220T193000
DTSTAMP:20260403T201916
CREATED:20250115T162407Z
LAST-MODIFIED:20250115T162407Z
UID:109931-1740074400-1740079800@www.pfic.org
SUMMARY:February IMPACT Focus Group
DESCRIPTION:Join us for our next Focus Group in February!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Thursday\, February 20th at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now!
URL:https://www.pfic.org/event/february-impact-focus-group-2/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250228T000000
DTEND;TZID=UTC:20250228T233000
DTSTAMP:20260403T201916
CREATED:20250109T172913Z
LAST-MODIFIED:20250109T172913Z
UID:109925-1740700800-1740785400@www.pfic.org
SUMMARY:Rare Disease Day
DESCRIPTION:Rare Disease Day is the global movement for rare diseases\, working towards equity in social opportunity\, healthcare\, and access to diagnosis and therapies for people living with a rare disease. Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. It was created in 2008 by EURORDIS and over 60 national alliance patient organisation partners.
URL:https://www.pfic.org/event/rare-disease-day-2/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250422T180000
DTEND;TZID=UTC:20250422T193000
DTSTAMP:20260403T201916
CREATED:20250319T153721Z
LAST-MODIFIED:20250319T153721Z
UID:109975-1745344800-1745350200@www.pfic.org
SUMMARY:April IMPACT Focus Group
DESCRIPTION:Join us for our next Focus Group in April!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Tuesday\, April 22nd at 6pm EST on Zoom for our final IMPACT Focus Group! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now!
URL:https://www.pfic.org/event/april-impact-focus-group/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250608T130000
DTEND;TZID=America/New_York:20250608T140000
DTSTAMP:20260403T201916
CREATED:20250527T192032Z
LAST-MODIFIED:20250527T192032Z
UID:110078-1749387600-1749391200@www.pfic.org
SUMMARY:PFIC Germany Zoom Meetup
DESCRIPTION:We would like to share a special invitation from Nikolina in Germany\, a member of the International Alliance: \n?PFIC Germany is calling! Are you a PFIC patient or a caregiver living in Germany? We would love to get in touch with you! We are organizing a Zoom meeting for PFIC families in Germany to share stories\, support each other\, and build a strong local community. \nOur first meeting on June 8 at 7 pm CEST (UTC+2) will be focused on getting to know each other. \nIf you’re interested\, please send an email to Nikolina: pfic.deutschland@gmail.com \nLet’s come together and support each other. You are not alone! \n  \n✨️ Ankündigung! ✨️\nWir haben ein Datum für unser erstes Online-Meeting: Am 8. Juni um 19 Uhr! ?\nEs wird ein entspannter Austausch mit PFIC Familien.\nWenn noch jemand Interesse hat\, meldet euch gerne bei uns – ihr erhaltet dann demnächst den Zugangslink.\nWir freuen uns auf einen schönen gemeinsamen Abend!
URL:https://www.pfic.org/event/pfic-germany-zoom-meetup/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250626
DTEND;VALUE=DATE:20250629
DTSTAMP:20260403T201916
CREATED:20240523T020005Z
LAST-MODIFIED:20241026T213312Z
UID:98551-1750896000-1751155199@www.pfic.org
SUMMARY:2025 Cholestatic Liver Disease Summit
DESCRIPTION:The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE)\, we will be gathering the wider cholestatic liver disease community together in one place. This unique event will foster collaboration and learning between patients and families\, researchers\, clinicians and industry stakeholders. We hope you can join us! \nStay tuned for more event details!
URL:https://www.pfic.org/event/2025-pfic-family-scientific-conference/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250705T060000
DTEND;TZID=UTC:20250705T073000
DTSTAMP:20260403T201916
CREATED:20250509T193309Z
LAST-MODIFIED:20250509T193309Z
UID:110042-1751695200-1751700600@www.pfic.org
SUMMARY:PFIC International Alliance Meeting 2025 (Session 1)
DESCRIPTION:PFIC International Alliance Annual Virtual Meeting \n Saturday\, July 5\, 2025\nJoin us for a global forum of collaboration\, strategy\, and community as the PFIC International Alliance brings together organizations and advocates from around the world. \nTwo different session times are offered to accomodate as many time zones as possible: 6 AM EST  and 3 PM EST. \n\n\n  \n  \n  \nWhy Attend?\nThis annual meeting is your opportunity to: \n\nAlign on advocacy and policy strategies\n\nShare and access medically accurate\, translated educational resources\n\nBrainstorm creative ways to boost awareness\, support patients\, and advance research\n\n\nAgenda Highlights:\n\nLeadership & Drug Access Updates\n\nGlobal PFIC Priorities & Activities\n\nAwareness Day Messaging & Involvement\n\nOpen Discussion: Needs\, Stories & Ideas\n\n\nTogether\, we grow stronger.\n Let’s connect\, collaborate\, and take action for the global PFIC community. \n? Register now:  \nRegistration Link Saturday\, July 5\, 0600(US/EST)\, 1100 (UK)\, 1200 (Rome\, Malta)\, https://us06web.zoom.us/meeting/register/CtnW4E3HRsWlN9WW9wPYuw \nRegistration Link Saturday\, July 5\, 1500 (US/EST)\, 2000 (UK)\, 2100 (Rome\, Malta) \nhttps://us06web.zoom.us/meeting/register/0YkLZAAIRCGyoPYNiYEN9g
URL:https://www.pfic.org/event/pfic-international-alliance-meeting-2025-session-1/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250705T150000
DTEND;TZID=UTC:20250705T163000
DTSTAMP:20260403T201916
CREATED:20250509T193559Z
LAST-MODIFIED:20250509T193559Z
UID:110050-1751727600-1751733000@www.pfic.org
SUMMARY:PFIC International Alliance Meeting 2025 (Session 2)
DESCRIPTION:PFIC International Alliance Annual Virtual Meeting \n Saturday\, July 5\, 2025\nJoin us for a global forum of collaboration\, strategy\, and community as the PFIC International Alliance brings together organizations and advocates from around the world. \nTwo different session times are offered to accomodate as many time zones as possible: 6 AM EST  and 3 PM EST. \n\n\n  \n  \n  \nWhy Attend?\nThis annual meeting is your opportunity to: \n\nAlign on advocacy and policy strategies\n\nShare and access medically accurate\, translated educational resources\n\nBrainstorm creative ways to boost awareness\, support patients\, and advance research \n\nAgenda Highlights:\n\nLeadership & Drug Access Updates\n\nGlobal PFIC Priorities & Activities\n\nAwareness Day Messaging & Involvement\n\nOpen Discussion: Needs\, Stories & Ideas \n\nTogether\, we grow stronger.\n Let’s connect\, collaborate\, and take action for the global PFIC community. \n? Register now:  \nSession 1 Registration Link Saturday\, July 5\, 0600(US/EST)\, 1100 (UK)\, 1200 (Rome\, Malta)\, https://us06web.zoom.us/meeting/register/CtnW4E3HRsWlN9WW9wPYuw \nSession 2 Registration Link Saturday\, July 5\, 1500 (US/EST)\, 2000 (UK)\, 2100 (Rome\, Malta) \nhttps://us06web.zoom.us/meeting/register/0YkLZAAIRCGyoPYNiYEN9g
URL:https://www.pfic.org/event/pfic-international-alliance-meeting-2025-session-2/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250901
DTEND;VALUE=DATE:20250902
DTSTAMP:20260403T201916
CREATED:20250401T205640Z
LAST-MODIFIED:20250708T214350Z
UID:109984-1756684800-1756771199@www.pfic.org
SUMMARY:3rd Annual PFIC Charity Party + Disc Golf Tournament
DESCRIPTION:SAVE THE DATE! September 1\, 2025 \nThe last two years have been so much fun that we are back again for our 3rd Annual Charity  Party + Disc Golf Tournament at Redpoint BBQ in the beautiful Red River Gorge of Kentucky. Join us on Monday September 1\, 2025 (Labor Day) for a day of disc golf\, cornhole\, family fun and more! \nVisit our event website to find out more or to register!\nInterested in sponsoring this awesome community event? Please contact us!
URL:https://www.pfic.org/event/3rd-annual-pfic-charity-party-disc-golf-tournament/
LOCATION:Redpoint BBQ\, 356 Smith Rd\, Campton\, Kentucky\, 41301
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250925
DTEND;VALUE=DATE:20250928
DTSTAMP:20260403T201916
CREATED:20250906T174419Z
LAST-MODIFIED:20250906T174419Z
UID:110424-1758758400-1759017599@www.pfic.org
SUMMARY:The National Liver Gathering 2025
DESCRIPTION:We will be attending The National Liver Gathering in Pittsburgh\, PA. We hope to see you there!
URL:https://www.pfic.org/event/the-national-liver-gathering-2025/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251005
DTEND;VALUE=DATE:20251006
DTSTAMP:20260403T201916
CREATED:20250324T191717Z
LAST-MODIFIED:20250324T191717Z
UID:109982-1759622400-1759708799@www.pfic.org
SUMMARY:7th Annual PFIC Awareness Day
DESCRIPTION:Every year we recognize\, share\, and support the PFIC community in hopes for a better future for those we love. We use this day to raise awareness and funds to support the PFIC Network mission! To find out more\, please visit our PFIC Awareness Day website.
URL:https://www.pfic.org/event/7th-annual-pfic-awareness-day/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251023T170000
DTEND;TZID=UTC:20251023T200000
DTSTAMP:20260403T201916
CREATED:20251007T140516Z
LAST-MODIFIED:20251007T140516Z
UID:110607-1761238800-1761249600@www.pfic.org
SUMMARY:ClimbTime Oakley Halloween Party
DESCRIPTION:The PFIC Network team will be fundraising at Climb Time Oakley in Cincinnati! \n🎃 HALLOWEEN PARTY + SHOE DEMO + FUNDRAISER NIGHT! 👻\nOct 23 | 5–8 PM | Climb Time Oakley    Cincinnati\, Ohio\nJoin us for a spooktacular evening of climbing\, costumes\, and community fun! 🧗‍♀️✨ \n👟 So iLL Climbing Shoe Demo — Try out the latest climbing shoes and level up your send game. 20% off during Demo day! \n🎭 Costume Contest — Prize for the most creative and creepy!\n🎃 Treats + Tunes + Good Vibes\n💪 PFIC Fundraiser — 🩵 PFIC is a rare genetic liver condition with no known cure—early diagnosis\, awareness\, and treatment can help manage symptoms and improve quality of life.\n🧗 RRGCC Membership Drive — Join the movement to protect and expand our climbing community! \nBring your friends\, dress up\, climb hard\, and support great causes! 💜
URL:https://www.pfic.org/event/climbtime-oakley-halloween-party/
LOCATION:Cincinnati\, Ohio\, Cincinnati\, Ohio\, USA
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251107
DTEND;VALUE=DATE:20251111
DTSTAMP:20260403T201916
CREATED:20250906T174113Z
LAST-MODIFIED:20250906T174113Z
UID:110421-1762473600-1762819199@www.pfic.org
SUMMARY:The Liver Meeting 2025
DESCRIPTION:Come see us at our booth at The Liver Meeting 2025 in Washington DC! The Liver Meeting is the annual meeting of the American Association for the Study of Liver Diseases (AASLD) and is one of the largest hepatology conferences in the country. We are honored to represent the PFIC community at this event. \n  \n 
URL:https://www.pfic.org/event/the-liver-meeting-2025/
LOCATION:IL
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260709
DTEND;VALUE=DATE:20260711
DTSTAMP:20260403T201916
CREATED:20260103T155056Z
LAST-MODIFIED:20260201T210540Z
UID:110751-1783555200-1783727999@www.pfic.org
SUMMARY:2026 PFIC Family & Scientific Conference
DESCRIPTION:2026 PFIC Family & Scientific Conference\nJuly 9-10\, 2026 | Chicago\, IL \nJoin the PFIC community for connection\, learning\, and collaboration in Chicago. This gathering brings together patients\, families\, clinicians\, and researchers from around the world. Learn more by visiting our event website or register today! \n 
URL:https://www.pfic.org/event/2026-pfic-family-scientific-conference/
LOCATION:Chicago\, Illinois\, Chicago\, IL\, United States
CATEGORIES:Conferences
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261005
DTEND;VALUE=DATE:20261006
DTSTAMP:20260403T201916
CREATED:20251029T192733Z
LAST-MODIFIED:20251029T192733Z
UID:110622-1791158400-1791244799@www.pfic.org
SUMMARY:8th Annual PFIC Awareness Day
DESCRIPTION:  \n \nEvery year we recognize\, share\, and support the PFIC community in hopes for a better future for those we love. We use this day to raise awareness and funds to support the PFIC Network mission! To find out more\, please visit our PFIC Awareness Day website. \n 
URL:https://www.pfic.org/event/8th-annual-pfic-awareness-day/
LOCATION:IL
END:VEVENT
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