3rd Annual PFIC Charity Party + Disc Golf Tournament
2025-09-01 | Redpoint BBQ, 356 Smith Rd, Campton, Kentucky, 41301
SAVE THE DATE! September 1, 2025
The last two years have been so much fun that we are back again for our 3rd Annual Charity Party + Disc Golf Tournament at Redpoint BBQ in the beautiful Red River Gorge of Kentucky. Join us on Monday September 1, 2025 (Labor Day) for a day of disc golf, cornhole, family fun and more!
Visit our event website to find out more or to register!
Interested in sponsoring this awesome community event? Please contact us!

The National Liver Gathering 2025
2025-09-25 - 2025-09-27
We will be attending The National Liver Gathering in Pittsburgh, PA. We hope to see you there!

7th Annual PFIC Awareness Day
2025-10-05
Every year we recognize, share, and support the PFIC community in hopes for a better future for those we love. We use this day to raise awareness and funds to support the PFIC Network mission! To find out more, please visit our PFIC Awareness Day website.

ClimbTime Oakley Halloween Party
2025-10-23 17:00 - 20:00 UTC | Cincinnati, Ohio, Cincinnati, Ohio, USA
The PFIC Network team will be fundraising at Climb Time Oakley in Cincinnati!
🎃 HALLOWEEN PARTY + SHOE DEMO + FUNDRAISER NIGHT! 👻
Oct 23 | 5–8 PM | Climb Time Oakley Cincinnati, Ohio
Join us for a spooktacular evening of climbing, costumes, and community fun! 🧗‍♀️✨
👟 So iLL Climbing Shoe Demo — Try out the latest climbing shoes and level up your send game. 20% off during Demo day!
🎭 Costume Contest — Prize for the most creative and creepy!
🎃 Treats + Tunes + Good Vibes
💪 PFIC Fundraiser — 🩵 PFIC is a rare genetic liver condition with no known cure—early diagnosis, awareness, and treatment can help manage symptoms and improve quality of life.
🧗 RRGCC Membership Drive — Join the movement to protect and expand our climbing community!
Bring your friends, dress up, climb hard, and support great causes! 💜

The Liver Meeting 2025
2025-11-07 - 2025-11-10
Come see us at our booth at The Liver Meeting 2025 in Washington DC! The Liver Meeting is the annual meeting of the American Association for the Study of Liver Diseases (AASLD) and is one of the largest hepatology conferences in the country. We are honored to represent the PFIC community at this event.

Cholestatic Liver Diseases Canada: Patient Empowerment & Education Day (Virtual Event)
2026-05-02 10:30 - 15:00 | Online
🍁📣Calling all Canadian PFIC community members!
PFIC Network will be attending the Cholestatic Liver Diseases Canada: Patient Empowerment & Education Day, a virtual event funded by Mirum Pharmaceuticals Canada on Saturday, May 2nd!
Our Executive Director, Emily Ventura, will be joining patients, caregivers, advocates, and medical experts for a day of learning and connection.
This event is open to patients with PFIC and Alagille Syndrome and their caregivers across Canada.
Register here: https://ccr5sw86obb.typeform.com/PatientForum52

Free Webinar: "Assessing Liver Disease: What Do All These Tests Mean?”
2026-06-17 20:00 - 21:00 | Online
Join us Wednesday, June 17th at 8pm Eastern Time for a webinar presented by Dr. Benjamin Shneider, a member of our Scientific Medical Advisory Board. This talk, “Assessing Liver Disease – What Do All These Tests Mean?” will cover PFIC basics and leave time for questions.
Dr. Shneider is the Service Chief of Pediatric Gastroenterology, Hepatology and Nutrition at Texas Children’s Hospital and a Professor of Pediatrics at Baylor College of Medicine and has spent a large portion of his career researching and treating cholestatic liver diseases like PFIC.
Register today: https://us06web.zoom.us/meeting/register/hIaX_fsnTDu6x6CB8_DcMg#/registration

2026 PFIC Family & Scientific Conference
2026-07-09 - 2026-07-10 | Chicago, Illinois, Chicago, IL, United States
2026 PFIC Family & Scientific Conference
July 9-10, 2026 | Chicago, IL
Join the PFIC community for connection, learning, and collaboration in Chicago. This gathering brings together patients, families, clinicians, and researchers from around the world. Learn more by visiting our event website or register today!

4th Annual PFIC Charity Party + Disc Golf Tournament
2026-09-07 | Redpoint BBQ, 356 Smith Rd, Campton, Kentucky, 41301
SAVE THE DATE! September 7, 2026
Three years in and we just keep having more fun. Join us for our 4th Annual Charity Party + Disc Golf Tournament at Redpoint BBQ in the beautiful Red River Gorge of Kentucky!
Mark your calendars for Monday, September 7, 2026 (Labor Day) for a day of disc golf, cornhole, and more!

Interested in sponsoring this awesome community event? Please contact us!

8th Annual PFIC Awareness Day
2026-10-05

2027 Cholestatic Liver Disease Summit
2027-06-24 - 2027-06-26
Save The Date! June 24-26, 2027 | Kansas City, Missouri
In 2027, the PFIC Family and Scientific Conference will be part of the 2nd Cholestatic Liver Disease Summit! We’re teaming up with Alagilles Syndrome Alliance and Biliary Atresia Research & Education for an amazing event bringing together the wider cholestatic liver disease community for a multi-day summit with our patient & scientific communities.
Visit the conference website to find out more!
