Events

PFIC Network State of the Union Address

The Board of Directors will be hosting a Facebook Live event to update the community on PFIC Network events, organization updates and milestones we have accomplished. We will also go over future plans we have in the works for the upcoming calendar year.

AASLD The Liver Meeting 2021

The PFIC Network will be registering to attend the AASLD Liver Meeting, 2021. Patients and affiliates are encouraged to sign up to learn more! More details on website: DATE OF EVENT Friday, November 12, 2021 - 8:00 am - Tuesday, November 16, 2021 - 3:00 pm LOCATION Anaheim, CaliforniaUnited States

Global Advisory Board

Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. Together, we hope that we can create solutions to fit all resource gaps.

Kids Club Community Call

Join in on the PFIC Kids Club community call with your PFIC Kid! It is a ton of fun for the kids as they learn they are not alone. The call for December is themed around the holidays! Click the link below to join. https://www.pfic.org/pfic-community-zoom-room/  

Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together in unity to show that just because you have a rare disease, does not mean you are alone.

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to […]

2022 Scientific Conference

Pittsburgh, PA 1111 Airport Boulevard, Pittsburgh, Pennsylvania, United States, 15231, Pittsburgh, PA, United States

The PFIC Network will be hosting a scientific meeting for researchers, patients, providers and industry partners on April 29-30 in Pittsburg, Pennsylvania. This will be a hybrid meeting with opportunities to present research both in person and virtual.  Important Dates:  Abstract submission deadline: January 21, 2020 Final decision on presentations: January 28, 2020 Submit abstract: […]

Kids Club Community Call (Moved from the 21st)

Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the PFIC Community.

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as advocacy and policy issues in participating countries. Because of time zone differences across the globe we will be having two different meetings for people to […]

Recurring

Project REACH – Pakistan

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists of a three-part workshop series leveraging interpretation services, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September, […]

Recurring

Project REACH – India

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists of a three-part workshop series leveraging interpretation services, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September, […]

Recurring

Project REACH – Pakistan

Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists of a three-part workshop series leveraging interpretation services, dedicated to PFIC disease and advocacy education tailored to each participating country. Through the month of September, […]