PFIC Community Call
2021-01-05 17:00 - 18:00 (America/New_York)
PFIC Community Calls through January will be hosted by the PFIC Network as a place for members of the community to connect and ask questions. These calls are open to PFIC community members.
Topic: PFIC Community Call
Time: Jan 29, 2021 05:00 PM Eastern Time (US and Canada)
Join Zoom Meeting
https://zoom.us/j/7275588969
Meeting ID: 727 558 8969
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Meeting ID: 727 558 8969
Find your local number: https://zoom.us/u/adNAYci0NT

Kids Club-Zoom Chat
2021-09-13 16:00 - 17:00 UTC
This zoom chat is very special. It is a chat room hosted by kids with PFIC, for kids with PFIC. The hosts, Cade (17), Cadence (11) and Cedar (9), have all been through/are going through PFIC and understand what it is like to be a kid who is itchy, who has had multiple hospitalizations, who has had a liver transplant, who has to take many medications, or whose parents just keep talking about PFIC.
These kids are very special. Starting on September 13 @ 4 pm EST (USA), they are going to meet via zoom. They enjoy getting together on zoom to do art together, have show and tell, talk about their favorite activities, or just hang out. They are also open to talking with other kids about having PFIC.
Kids of all ages, from all areas of the world are welcome. PFIC Network can help with language support, time zone conversion, or tech facilitation if needed, so please contact lisa@pfic.org if you or your child would like to join but may need additional assistance

Kids Club Community Call
2021-10-18 16:00 - 17:00 UTC
Join in on the Kids Club Community call starting at 4 PM EST!

Kids Club Community Call
2021-12-13 16:00 - 17:00 (America/Kentucky/Louisville)
Join in on the PFIC Kids Club community call with your PFIC Kid! It is a ton of fun for the kids as they learn they are not alone.
The call for December is themed around the holidays! Click the link below to join.
https://www.pfic.org/pfic-community-zoom-room/

Kids Club Community Call (Moved from the 21st)
2022-06-28 16:00 - 17:00 UTC
Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the PFIC Community.

PFIC IMPACT October Focus Group Meeting
2024-10-22 18:00 - 19:30 UTC
Join us for our next Focus Group in October!

Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT, please visit our project website.
Register Now!

Cholestatic Liver Diseases Canada: Patient Empowerment & Education Day (Virtual Event)
2026-05-02 10:30 - 15:00 UTC | Online
🍁📣Calling all Canadian PFIC community members!
PFIC Network will be attending the Cholestatic Liver Diseases Canada: Patient Empowerment & Education Day, a virtual event funded by Mirum Pharmaceuticals Canada on Saturday, May 2nd!
Our Executive Director, Emily Ventura, will be joining patients, caregivers, advocates, and medical experts for a day of learning and connection.
This event is open to patients with PFIC and Alagille Syndrome and their caregivers across Canada.
Register here: https://ccr5sw86obb.typeform.com/PatientForum52
