BEGIN:VCALENDAR VERSION:2.0 PRODID:-//PFIC - ECPv6.16.2//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:PFIC X-ORIGINAL-URL:https://www.pfic.org X-WR-CALDESC:Events for PFIC REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:UTC BEGIN:STANDARD TZOFFSETFROM:+0000 TZOFFSETTO:+0000 TZNAME:UTC DTSTART:20200101T000000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Kentucky/Louisville BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=UTC:20210913T160000 DTEND;TZID=UTC:20210913T170000 DTSTAMP:20260626T075627 CREATED:20210907T122813Z LAST-MODIFIED:20210907T122954Z UID:92247-1631548800-1631552400@www.pfic.org SUMMARY:Kids Club-Zoom Chat DESCRIPTION:This zoom chat is very special. It is a chat room hosted by kids with PFIC\, for kids with PFIC. The hosts\, Cade (17)\, Cadence (11) and Cedar (9)\, have all been through/are going through PFIC and understand what it is like to be a kid who is itchy\, who has had multiple hospitalizations\, who has had a liver transplant\, who has to take many medications\, or whose parents just keep talking about PFIC. \nThese kids are very special. Starting on September 13 @ 4 pm EST (USA)\, they are going to meet via zoom. They enjoy getting together on zoom to do art together\, have show and tell\, talk about their favorite activities\, or just hang out. They are also open to talking with other kids about having PFIC. \nKids of all ages\, from all areas of the world are welcome. PFIC Network can help with language support\, time zone conversion\, or tech facilitation if needed\, so please contact lisa@pfic.org if you or your child would like to join but may need additional assistance URL:https://www.pfic.org/event/kids-club-zoom-chat/ CATEGORIES:Community Calls END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20211018T160000 DTEND;TZID=UTC:20211018T170000 DTSTAMP:20260626T075627 CREATED:20211014T180401Z LAST-MODIFIED:20211014T180401Z UID:92538-1634572800-1634576400@www.pfic.org SUMMARY:Kids Club Community Call DESCRIPTION:Join in on the Kids Club Community call starting at 4 PM EST! URL:https://www.pfic.org/event/kids-club-community-call/ CATEGORIES:Community Calls END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Kentucky/Louisville:20211213T160000 DTEND;TZID=America/Kentucky/Louisville:20211213T170000 DTSTAMP:20260626T075627 CREATED:20211021T150921Z LAST-MODIFIED:20211210T171828Z UID:92567-1639411200-1639414800@www.pfic.org SUMMARY:Kids Club Community Call DESCRIPTION:Join in on the PFIC Kids Club community call with your PFIC Kid! It is a ton of fun for the kids as they learn they are not alone. \nThe call for December is themed around the holidays! Click the link below to join. \nhttps://www.pfic.org/pfic-community-zoom-room/ \nĀ  URL:https://www.pfic.org/event/kids-club-community-call-2/ CATEGORIES:Community Calls END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20220628T160000 DTEND;TZID=UTC:20220628T170000 DTSTAMP:20260626T075627 CREATED:20220621T134945Z LAST-MODIFIED:20220621T134945Z UID:94329-1656432000-1656435600@www.pfic.org SUMMARY:Kids Club Community Call (Moved from the 21st) DESCRIPTION:Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything\, play games\, and have fun in the PFIC Community. URL:https://www.pfic.org/event/kids-club-community-call-moved-from-the-21st/ CATEGORIES:Community Calls END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20241022T180000 DTEND;TZID=UTC:20241022T193000 DTSTAMP:20260626T075627 CREATED:20240919T185829Z LAST-MODIFIED:20240919T185829Z UID:109690-1729620000-1729625400@www.pfic.org SUMMARY:PFIC IMPACT October Focus Group Meeting DESCRIPTION:Join us for our next Focus Group in October!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Tuesday\, October 22nd at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now! URL:https://www.pfic.org/event/pfic-impact-october-focus-group-meeting/ CATEGORIES:Advocacy Events,Community Calls END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20260502T103000 DTEND;TZID=UTC:20260502T150000 DTSTAMP:20260626T075627 CREATED:20260422T212237Z LAST-MODIFIED:20260422T212320Z UID:111055-1777717800-1777734000@www.pfic.org SUMMARY:Cholestatic Liver Diseases Canada: Patient Empowerment & Education Day (Virtual Event) DESCRIPTION:šŸšŸ“£Calling all Canadian PFIC community members! \nPFIC Network will be attending theĀ Cholestatic Liver Diseases Canada: Patient Empowerment & Education Day\, a virtual event funded by Mirum Pharmaceuticals Canada onĀ Saturday\, May 2nd! \nOur Executive Director\, Emily Ventura\, will be joining patients\, caregivers\, advocates\, and medical experts for a day of learning and connection. \nThis event is open to patients with PFIC and Alagille Syndrome and their caregivers across Canada. \nRegister here: https://ccr5sw86obb.typeform.com/PatientForum52 \nĀ  URL:https://www.pfic.org/event/cholestatic-liver-diseases-canada-patient-empowerment-education-day/ LOCATION:Online CATEGORIES:Community Calls,Educational Webinar Series END:VEVENT END:VCALENDAR