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DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
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UID:93110-1646006400-1646092799@www.pfic.org
SUMMARY:Rare Disease Day
DESCRIPTION:Raising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \nRare disease day brings people with all rare diseases together in unity to show that just because you have a rare disease\, does not mean you are alone.
URL:https://www.pfic.org/event/rare-disease-day/
CATEGORIES:Advocacy Events
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20231005
DTEND;VALUE=DATE:20231006
DTSTAMP:20260507T064300
CREATED:20200909T202430Z
LAST-MODIFIED:20230627T141100Z
UID:88725-1696464000-1696550399@www.pfic.org
SUMMARY:PFIC Awareness Day
DESCRIPTION:The fifth annual PFIC Awareness Day is October 5\, 2023. The PFIC community around the world will hold advocacy and awareness events to honor patients\, families\, and caregivers. Awareness Day is used to spread information about our rare disease to help our supporter community grow\, and help us find more patients who need help and support.
URL:https://www.pfic.org/event/pfic-awareness-day/
CATEGORIES:Advocacy Events
ORGANIZER;CN="PFIC Network%2C Inc.":MAILTO:emily@pfic.org
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DTSTART;TZID=UTC:20241022T180000
DTEND;TZID=UTC:20241022T193000
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CREATED:20240919T185829Z
LAST-MODIFIED:20240919T185829Z
UID:109690-1729620000-1729625400@www.pfic.org
SUMMARY:PFIC IMPACT October Focus Group Meeting
DESCRIPTION:Join us for our next Focus Group in October!\n\n\nJoin our community of patients\, parents\, clinicians\, and researchers on Tuesday\, October 22nd at 6pm EST on Zoom for a conversation about PFIC research priorities! You do not need to have attended a previous IMPACT Focus Group to join us. For more information about Project IMPACT\, please visit our project website. \nRegister Now!
URL:https://www.pfic.org/event/pfic-impact-october-focus-group-meeting/
CATEGORIES:Advocacy Events,Community Calls
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