PFIC Progressive Familial Intrahepatic Cholestasis-Resource for Pediatric Liver Disease

Aid

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Below is from the U.S. Department for Health and Human Services. 
http://www.insurekidsnow.gov/  or To learn more, go to Your State's Program or make a free call to 1-877-KIDS-NOW for more information.
 
Also this site helps organ donor and transplant patients and their families.

Social Security Child Disability Starter Kit (for children under age 18)

Peptamen Junior is a peptide-based elemental diet for the nutritional needs for GI-compromised children. Sometimes doctors recommend this product, but it is very expensive and not always covered by insurance. Recently I found two programs that may help families buy this product.

Nestle Homelink, 1-800-776-5446, sells Peptamen Jr directly to you and offers free home delivery with a 3-to-5 day delivery window.

Nestle Nutrition products has also established a financial assistance program for individuals based on medical and financial need. For information on that program you can contact them through the web-site

www.nestleclinicalnutrition.com

or write:

Nestle Nutrition Products

Financial Assistance Coordinator
Nestle Nutrition
3 Parkway North, Suite 500
Deerfield, IL 60015